In the emergency department, I saw a 52-year-old female that was here for a flare up of her systemic lupus erythematosis (SLE). Let’s call her “Lupe.” So Lupe has been in and out of the hospital for the past several years for different reasons. One time it was for severe back pain. Another time was low energy from anemia. The most recent time was for acute lupus nephritis (kidney failure) which required for her to start hemodialysis every other day (hemodialysis is a method of purifying the blood when the kidneys aren’t working properly).
Lupe was here this time for a lot of critical lab values found on her blood work – a poor sign for those with kidney failure. SLE is a devastating disease, and it can affect almost everything in the body. If kidney failure is one of them, it’s usually a poor prognosis. I felt sorry for Lupe because she was so crippled from this menacing illness.
What is SLE?
So normally, our bodies create specific defense mechanisms to disease called antibodies. These antibodies attach themselves to infections and/or cancer. They either destroy the invader like a bomb or sound an alarm to the rest of the body so it can mount an attack. In SLE, these antibodies malfunction. Instead of attacking disease, they target healthy tissue. This leads to all kinds of destruction from the skin to the heart to the kidneys and everywhere in between.
The treatment of SLE is focused on managing symptoms and minimizing the risk of flares. Basically, that means there currently is no cure for the disease. We are giving medications to prevent these antibodies from attacking the body, but those antibodies will always come back. Well, what if we just replaced the cells that made the malfunctioning antibodies with new cells that work? Here’s some interesting research that has been shown to be successful in drug resistant SLE. Unfortunately it’s not quite ready for widespread use and is only available at the big name research universities.
Lupe did not meet the criteria for stem cell treatment at the time. So naturally, I thought she would be really depressed from all these constant flares and hospital admissions. Actually it was quite the opposite. Lupe had a great big smile on her face when I entered the room. She chuckled, made jokes with me, and thanked me for coming to see her. She radiated all this positive energy in the room. It’s as if the person lying in bed before me was a completely different person from the one I looked up on the computer.
Lupe replaced her bad luck with good luck.
Luck was traditionally described as a strange force that some believed to be controlled by magic and bizarre rituals: a baseball player performing this ritual before every at bat, a man at a restaurant throwing a pinch of salt over his shoulder after spilling salt, or a little girl crossing her fingers for good luck. Luck seemed to be out of this world, strange, and for the most part inconsistent. But what if we were able to control our own luck?
In 2003, this ten-year study on the nature of luck has suggested that people have the ability to create their own fortune. The results proposed that people who believed they were lucky created their own luck by these four principles:
- Creating and noticing chance opportunities
- Make lucky decisions by listening to their intuition
- Create self-fulfilling prophecies via positive expectations
- Adopt a resilient attitude that transforms bad luck into good
Lupe created her chance opportunity by moving to an area near my hospital because of the great care she receives. She listened to her intuition and continued coming for treatment even though it seemed to be getting worse. Although she has a really severe case of SLE, Lupe was positive because she was alive. Lupe smiled and had joy. But above all else, she was resilient. She hasn’t given up. Her bad luck was on the cusp of turning good, if it hasn’t already.
I challenge you to create your own luck. Always be on the lookout for new opportunities. Listen to your gut and take the road less traveled. Stay unreasonably optimistic. And most of all, be strong.
Are you feeling lucky? Share your luck with us below!
By the way, May is Lupus Awareness Month!
To say NO to LUPUS, we must KNOW LUPUS. Share for awareness!
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I love the theme of your blog! You do a good job of breaking up text and adding lists and images that keep me engaged!
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Thanks! It’s pretty tough to engage people in such a complicated and sciency topic, but I’m glad I didn’t lose you!
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This is right on point!! I complained to so many Dr’s about back pain, leg pain, fatigue, insomnia, lack of appetite, hives that only went away if I took Prednisone. I was told I needed to exercise more, that I had food allergies ( which no allergy tests were done), I was sent to see a psychiatrist because my Dr said I was having panic attacks & he thought my symptoms were from my PTSD or in my head!
This was 8-9 years ago. My new Dr did Labs on me & found my GFR RATE was low. After having a kidney biopsy they found I have Lupus. All my symptoms were Lupus! Not in my head. Now I have CKD STAGE 3B, Osteoarthritis, heart disease, Glaucoma, PTSD, anexity depression, AGORAPHOBIA, & more. I take 23 pills & Butrans Patch ( Opioid pain med) which I have a blog about. lupietrish. wordpress.com.
I’m so glad you are becoming aware of LUPUS. Your patients are lucky to have you. Thanks for making Lupus a focus…..
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Wow that’s a pretty severe case of lupus. I’m glad your new doctor was able to diagnose you. Keep on fighting.
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I totally agree. You have to think yourself happy. Perception is a powerful thing. Great content!
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Thank you! It is all about perspective. And I agree, happiness comes from within.
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Hi Dr. Mike,
It’s great you have time to blog and be a doctor.
I met you in the Community Pool where you indicated you are a new blogger. I help new bloggers at my site. Tips for engaging readers, improving content, and increasing traffic are waiting for you. I brought you the link to my About page, so you can read what my blog can do for you.
http://mostlyblogging.com/about/
I also offer free incentives for subscribing.
Janice
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Thanks! I’ll check it out!
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I will look forward to your visit.
Janice
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Change what you need to and make your own luck. Hope she gets the care and treatments she needs.
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Thanks she’s doing well last time I checked. It really is about creating your own luck and controlling your own fate.
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They thought for years that I had Lupus but we just recently found out it is a more rare type of auto inflammatory disease that acts like Lupus. It is so difficult to explain to people that don’t have it how it feels.
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Rheumatalolgical disease is still such a mystery. There are a lot of overlaps, so it must be frustrating to have a type of disease. The more information we spread, the more likely smarter people will come up with a solution! Thanks for sharing.
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Great work on the article. Topics like this are the ones worth reading and writing about. I know a friend that has Lupus and ill definitely forward her this article.
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Thank you for that kind comment. I hope your friend likes it.
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My husband’s mother had this and she has since passed. I also have some friends suffering from it as well. I will be happy to forward this to those I know.
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I’m sorry for your loss. It really is a devastating disease. Thank you for spreading the word.
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What a beautiful story – I think lupus is still a disease that is not talked about enough and most people don’t know all that much about it. I completely believe in creating your own opportunities and “luck” if you will through positive thinking. It goes such a long way in creating the life you want for yourself. Thanks for sharing such a great post. 🙂
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I’m glad you also believe in making your own luck. I think knowing that you can control your own fortune not only helps with your career, but with your personal life as well. The beauty of it is that this type of thinking has great generalizability. It can apply to anyone. Thanks for reading my post!
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“I’m a great believer in luck, and I find the harder I work, the more I have of it.” — Thomas Jefferson
And a lot of the time, that hard work includes those four points you mentioned.
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Love this post. I have a family member with Lupus and it can definitely be difficult. A lot of how we experience life and its ups and downs has to do with how we choose to see it and how we choose to react.
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Thanks and I agree with you. It’s all about perspective.
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A doctor thought I might have Lupus once upon a time. I thank Jehovah that was not the case. I thank Him for all the medical annoyances I have that have never turned into huge physical maladies. They are always little things, with solutions. I’m an optimist for sure, so never allow my physical body and my mental states to join forces against me, together. I know I’m a human, and at 60 will have a little something here or there flair up. Still, I believe I can make my way through it. Besides, I tell myself that I am blessed, feel Grace daily, and know that I’m living life in moments where peace, love and joy reside.
I came upon your reply from a post I read on another blog where the woman is afflicted with many illnesses. At present, I believe a few of these are serving her such that she can’t let go of them on her mental plane. I wished her the highest and best that medicine can provide, and mentioned the hold her emotions have over her in the gentlest way possible.
My mantra has always been: “Always tested, Never beaten.” The body may be weak at times, but the spirit is strong.
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That’s a great mantra! The only time we lose is when we give up.
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Reblogged this on Site Title and commented:
This answers the qeustion I get asked all the time “what is lupus?”
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Reblogged this on LupieTrish and commented:
An older read but a good one.
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